Inconsistent Treatment for Rare Diseases

Doctors are literally voting on how to treat patients because there is no standard rulebook for rare

diseases. A new study just exposed that treating severe Alpha-1 lung disease is a total

mess of inconsistency. They gathered top European experts to finally agree on a checklist for

things like CT scans and walking tests. But here is the catch. Most of the experts

were from the same area, and the fancy tests they want are too expensive for a

lot of hospitals. It is a wake-up call that even with expert guidelines, your zip code still

dictates your healthcare quality.